On December 2, I will have an endo-ileosotomy that will end a nine year, roller-coaster ride with Crohn's Disease.
Since my diagnosis at 16, this locomote of loops has gone at a variety of speeds and directions. Occasionally the ride was fairly smooth...trundling along but nothing I couldn't handle. Medicines worked and my colon cooperated.
Sometimes the ride took me upside down without a seat belt on a track without guard-rails. My body felt like it had given up, and I never wanted to leave sight of a bathroom. I did not see an end to these unpredictable thrills and spills until today.
I'm starting this blog to keep my friends, family, and maybe some even some fellow "Crohnies" out there, in the loop about one of the biggest changes I'll probably ever experience in my life. I've been through a lot with this disease and many of you have been riding this roller-coaster with me. I've made the decision to have a surgery that's going to allow me to experience a better quality of life, and I can't wait. December 2nd marks a new chapter of change for the better. So however you ended up here, I hope you'll stick with me for one more ride.
Hey kiddo -great idea - may help someone along the way. The ride has been a little longer though since you have been battling this since you were 13 (even though misdiagnosed). I am right there with you (although I may scream once in a while - lol - and will definitely not be putting both hands in the air :)!!!)
ReplyDeleteSubscribed!
ReplyDeleteHi Katie,
ReplyDeleteWe will always be here for you. You haven't had it easy these last 10 years, but you have managed to become a strong, beautiful woman. December 2nd is the start of a new journey for you! We love you!
Aunt Kathleen & Uncle Bill
Hi Katie,
ReplyDeleteI think this is a fabulous idea for many reasons. Uncle Lou & I will be thinking and praying for you on your journey to wellness and are looking forward to your posts. We love you!
Aunt Maureen & Uncle Lou
Hi Katie,
ReplyDeleteI ended up on your blog while helping Nan find it!! It's a wonderful idea, as you are in our thoughts and prayers every day!!!! You are a strong and courageous young woman and we wish you all the best over the next several months.
Love, Aunt Chris and Uncle John (and Dominic, Lauren, Michael and Ricky)